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LEARNING TO COPE

Breaking the bonds of OCD

With help, Sacramento teen overcomes her fears, even creates support group, Web site for others

Nikita Desai, 15, overcame obsessive compulsive disorder after four years of intensive therapy. The Sacramento teen now works to assure other teens with OCD that is it s a treatable disorder.

Published: Tuesday, September 8, 2009 at 4:02 a.m.
Last Modified: Tuesday, September 8, 2009 at 4:02 a.m.

SACRAMENTO - All outward appearances indicated that Nikita Desai was a happy 'tween, a model of emotional equipoise who nurtured a passion for piano and Indian dance, and acumen for all things science-related.

Confident and focused, a real striver, she was the kind of middle-school student that teachers treasure, friends gravitate toward and parents never need worry about.

No one could detect Desai's daily internal struggle: the nagging thoughts and panicked feelings, the compulsions and obsessions she hid from family, friends and, on a conscious level, denied even to herself.

The only inkling the Sacramento girl's mother, Bella, had that her daughter might be suffering from obsessive compulsive disorder were the late-night bedside visits when she would wake her parents and ask, "Am I not going to be smart anymore? Am I not going to be a good person?"

Eventually, Nikita admitted to her parents, who are both physicians, the full extent of her pathology. She told them of her numerous fears: how the presence of cigarette smoke made her feel she'd lose her intelligence; her tiring ritual of thinking about "only good people" when doing routine tasks like walking through doorways, tying shoes and zipping up her backpack; how she was so fretful of smells such as perfume or deodorant that she would breathe only through her mouth while walking the school halls.

"It was a constant struggle," says Nikita, now 15 and about to enter her junior year at Mira Loma High School. "I really didn't think I had a disorder. I just thought I was a really anxious and focused person getting too stressed out. Everyone had these stresses, and I was just taking it to the next level, I thought."

What she didn't know then, but soon learned and researched with a vengeance, was that she was among the 5 million Americans living with OCD, which manifests itself in repetitive washing, checking, hoarding and arranging, and a need for perfection.

No data exist to mark just how many children and teens are affected by OCD, but as nearly all experts say, adults with the disorder most likely developed the traits at a young age. The key to controlling OCD is to catch it early, according to Dr. Jeff Szymanski, director of psychological services at McLean Hospital's Obsessive Compulsive Disorder Institute in Belmont, Mass.

Such early intervention -- most notably a relatively new "exposure" therapy in which patients are forced to face their fears to overcome them -- has tamed Desai's OCD impulses to the point where her formerly all-consuming anxiety is nearly nonexistent.

She's even helping other teens deal with the disorder via a support group she started in Sacramento, along with a Web site (www.ocdkids.com) detailing services and providing a forum for teens.

Nikita's main point: OCD is a treatable disorder, like asthma or diabetes, and should not carry the social stigma attached to it.

The irony, Nikita acknowledges with a shy smile, is that "because I've gone through OCD treatment, I'm able to cope better than a lot of my friends on the everyday stresses. I'm able to see the big picture because of what I've gone through."

Coping? Forget coping. Nikita has thrived after four years of intense therapy. As a sophomore at Mira Loma, with its academically rigorous International Baccalaureate program, she received top marks and was a member of the Science Olympiad team that finished 10th in a national competition.

What's more, she no longer battles those internal demons that occupied every thought and action.

"Nikita was always so lively and fun-loving as a child," her mother says, "and we were seeing her turn into this person who looked stressed all the time. We are a loving, laid-back family that doesn't put pressure on Nikita or (younger sister) Uma.

"It's great to see her now. She was so brave to go through the therapy and overcome this."

Parents of children with OCD don't need to pressure kids, Szymanski says, because the young patients almost always do that for, and to, themselves.

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